Support Groups

There are a lot of support groups linked to individual medical conditions. Below is a selection of support groups but If you would like information on a support group for a specific condition that you cannot see here please contact the Cardiac Liaison Nurses.

Children's Heart Federation

The Children's Heart Federation is the leading children’s heart charity and the umbrella body for voluntary organisations working to meet the needs of children and young people with heart conditions and their families. Helpline, website and newsletter

	Help Line 0808 808 5000
	www.childrens-heart-fed.org.uk

Downs Heart Group

National goup with local contacts providing support and information for families. Newsletter and website:

	01525 220379
	www.dhg.org.uk

Grown up Congenital Heart (GUCH)

National group for adult and teenagers, providing families with support and information. Newsletter, website and social events.

	Help Line 0800 854 759
	www.guch.org.uk

Heartline

National support group for families with children with single ventricle conditions. Newletter, information booklet and website.

	01276 707636
	www.heartline.org.uk

Little Hearts Matter

National support group for families with children with single ventricle conditions. Newsletter, information booklet and website.

	Help Line 0121 455 8982
	www.lhm.org.uk
	Antenatal Information

Max Appeal

Support group for families with children affected by Di George Syndrome and 22q deletion. Information leaflets, website and newsletter.

	01384 821227
	www.maxappeal.org.uk

British Heart Foundation

Advice and information about living with a heart condition and how to keep healthy. Helpline and website

	Heart Help Line 0300 330 3311
	www.bhf.org.uk

Y Heart

Advice and information for young people with heart conditions. website

www.yheart.net

Rainbow Trust Children’s Charities

The Rainbow Trust Children’s Charities provides practical and emotional support to families with life threatening or terminal illness:

	01372 363438
	www.rainbowtrust.org.uk