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These websites have some helpful and interesting content. We recommend that you use a search engine such as ‘google’ to help find relevant sites. Please note that the accuracy of the information provided by these sites cannot be guaranteed as being completely correct. If you do have any concerns or need further information please contact the Liaison Nurses for help.

CCAD Database

This website provides information about surgical and catheter procedures from congenital heart units across the UK. It shows the number and type of procedure carried out each year at a national and individual hospital level. The information is broken down into four age groups: 

    • neonates – up to 30 days old
    • infants – between 31-365 days old
    • children – between one and 16 years old
    • adult – 16 years and older

The site profiles every congenital heart disease centre in the UK. It also shows survival rates for the most common types of procedures.


Cincinnati Children’s Hospital


American Heart Association


Rush Children’s Heart Centre


Hospital for sick children Toronto – Children can learn how their heart works


Melbourne Children’s Hospital Australia


A-Z of Pacemakers


Medicines for Children