Sam Prior (Chair) – Trustee
Hi, I am mum to Aaron 15yrs old, and Jadon 13yrs old. Aaron was born with a complex heart condition, Hypo Plastic Left Heart Syndrome (HLHS) which was diagnosed at my 20 wk scan. Aaron has had the 3 planned stages of surgery for his condition, the last major op was in 2005, he will need further surgery sometime in the future but here and now he is doing fantastically well.
After a long period as a stay at home mum I finally took the plunge to become a “working” mum in October 2010 as a “Projects Co-Ordinator” for a Nuclear Engineering company. I set up the coffee mornings for Ocean Ward families about 6 years ago and from there with the support of E1, myself, Jo Dyper, Susan Van Wyk & Rachel set up “Families of Ocean Ward” of which I am a Trustee and Chair Person.
Rachel Carter (Honorary Vice Chair) – Trustee
Hi, everyone. I am a mum to Hayden (Feb 2007) and Owen (Nov 2011). Hayden is my heart child and he has congenital complete heart block and dilated cardiomyopathy (related to his pacemaker). He had his 2nd pacemaker in January 2013 and hopefully that means quite a few years now without any further surgery.
I am a Preschool Assistant in a pre-school as well as looking after my 2 boys and I volunteer for Families of Ocean Ward, helping to organise events, keeping an eye on our facebook and website pages and general running of the charity.
Helen Tucker (Secretary) – Trustee
Hello, I am Helen, Mum to Benjamin. Adrian and I didn’t find out that Ben had Tetraology of Fallots (TOF) until he was 24 hours old. We were lucky enough to be able to take Ben home to ‘grow’ him for his repair operation which he successfully had at 5 months old. Ben is now a happy, healthy 4 year old. I now volunteer for Families of Ocean Ward and I hold the position of Secretary. I am also a Trustee of the charity to help it continue to provide the help to families.
Emma Cooper (Fundraising & Merchandise) -Trustee
Kate Dalton (Emergency Packs)
Kelly Sparks (Treasurer)
Hi, I’m mum to Logan, 5, and Amie, 3. At my 20 week scan we were told that Amie had complex congenital heart disease that affected the right side of her heart. She was born with tricuspid dysplasia, severe tricuspid regurgitation, pulmonary valve stenosis, grossly enlarged right atrium and an ASD. She had her first open heart surgery at 10 months old and will be having more surgery this year.
Di Hardy (Raffle Prizes)
Hi I’m a mum of two our second child at the 20 wk scan detected something wrong with his heart. Since then we’ve been part of a family here at ocean ward. Where they have not only looked after Alfie with amazing care but the whole family with love and support.
Updated Mar 2017
Interested in helping? Then let us know -email@example.com