Prepare for your admission
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We know this can be a stressful time and understand that talking about surgery can be difficult, but there is no doubt that some preparation before admission helps most children gain a sense of control through understanding.
As parents/carers, it is important that you understand as much as possible about the planned hospital admission, otherwise it can be difficult to confidently prepare your child. If you feel you need more information about your child’s planned treatment and hospital admission you should contact the cardiac liaison team on 023 8079 4659.
Preparing your child
It is important to explain to your child why they are coming into hospital in a way that they understand.
Age related guidelines
Newborn – 2 yrs. when your child is very young, concentrate on preparing yourself for the hospital. If parents feel at ease, their child is usually able to sense this and react in the same way.
2yrs – 3yrs. At this age children do not understand time in the same way as older children and adults. The Ward Play Specialists recommend using toys and books to help prepare your child for coming into hospital. Consider telling your child about his or her operation or procedure 1 or 2 days before coming to the hospital.
3yrs – 6yrs. At these ages children are beginning to learn about the days of the week and are developing a sense of time. It is hard for a child to understand why he or she needs an operation or procedure. Your child may worry that he or she has done something wrong. Reassure your child that the hospital stay is about fixing their heart and is never a punishment. Use simple, short explanations. Consider telling your 3 or 4 year old child about an operation or procedure 1 to 2 days before going to hospital and your 5 to 6 year old child 3 to 5 days ahead of time.
7yrs – 11yrs. At this age a child is able to understand the reason for a hospital stay or procedure. In addition children have developed a sense of time. You may want to tell your child about his or her operation or procedure 7 days before going to the hospital. This will give your child plenty of time to ask questions and to talk about any worries he or she may have about coming to the hospital.
12yrs – adult years. At this age it is best to include children/young people in planning for the operation or procedure from the beginning. Encourage your child to ask questions and to talk about his/her worries about the hospital. Most children are struggling for independence from their parents while at the same time seeking their support. You may want to ask your child how you can help him or her through the hospital stay or procedure.
Talking with your child about the hospital
Tell your child that he or she will be coming to the hospital for an operation, test or procedure.
Let your child know that you feel the hospital visit, procedure or test is the right thing to do. Children can usually sense how a parent feels so it is important to stay positive in front of your child as they will pick up on your worries/anxieties.
Choose a quiet time to talk.
Use a calm and relaxed tone.
Ask what your child knows or thinks about the hospital. Start with what seems the most important in your child’s mind.
Use honest and simple explanations that fit your child’s age and level of understanding. It is also important to mention any scars your child may have after the operation/procedure.
Use words and pictures that your child is familiar with when possible. Books, leaflets and videos are available to borrow from E1 ward.
Let your child know in advance if you know a test or procedure is about to happen, even it is something uncomfortable like a needle. This will give your child a feeling of trust.
Try to use words that are neutral when describing procedures and tests to your child. For example you may say ‘the doctor will slide the needle into your hand,’ rather than ‘stick’ or ‘poke’ a needle into your arm. You might want to tell your child that ‘during the operation the doctor will make a small opening in your chest’ rather than ‘the doctor will cut a hole in your chest’.
Try not to make promises you can’t keep, for example do not tell your child that nothing will hurt or there won’t be any blood tests. Use words your child may understand instead such as uncomfortable, scratch etc.
Tell your child how he or she may feel before, during and after the operation, procedure or test, for example you may want to explain to your child that he or she will not see, hear or feel anything during the operation as they will be asleep. Avoid the phrase ‘put to sleep’.
Tell your child about any plans for an overnight stay at the hospital. Let your child know that you will be able to sleep at the hospital too. Encourage your child to bring his or her favourite toys to the hospital, such as teddies, videos, DVDs, pillow, etc.
Build your child’s confidence by involving them in organising and packing a few things to help them during their visit.
Tell your child that family and friends will be able to visit.
Encourage your child to ask you and the doctors and nurses lots of questions. If your child is uneasy about asking questions, you can ask for him or her.
Ask your child questions to make sure he/she understands what you have said. It is important to make sure your child understands that he or she is going to hospital to have their heart checked or fixed and that an operation or procedure may be part of that.
Let your child know that it is ok to feel many different ways about coming to the hospital such as curious, worried, angry or frustrated.
Listen to your child’s feelings, and help him or her talk about them.
Involve siblings in preparation they may have their own questions and worries about their brother or sister coming into hospital.
Encouraging your child to play with hospital related toys can also be helpful to prepare him/her for coming to hospital. Below are a few suggestions.
- Happy land doctors surgery†
- Medical kits†
- Play doh operation kit†
- Dressing up†
† usually available from toys r us or early learning centre
- Playmobil operating room, ambulance
- Medical kits
- Playdough operation kit
- Drawing pictures
- Dressing up
- Lego city hospital/ambulance
- Drawing, painting, collage
- Dressing up
- Operation fix it book (available from British Heart Federation or E1 Ocean Ward)
- Books, leaflets, videos (all available from E1 Ocean Ward)
- Operation Board Game
- Talking to your child
It is also nice to plan something that all the family can do when the admission is over. Talk about the event as a positive when your child’s heart is better.
Play Specialists on E1 Ocean Ward. They can help to prepare your child when you come to the hospital, or arrange a visit to the ward if you feel this would help your child. They can be contacted by ringing the ward.
Paediatric Intensive Care Unit
Depending on the treatment you will receive you may be transferred to the Paediatric Intensive Care Unit after surgery. The PICU is a 14 bedded unit and treats over 700 patients per year. Children range in age from 0-16 years old. Specialities include cardiac surgery, neurosurgery, trauma, medical emergencies, and neonatal surgery.
Below is a list of books, which may be useful in helping to prepare your child for coming into hospital.
|‡||Topsy and Tim go to Hospital||Jean Adamson||9781904351269|
|‡||Talking it Through, Hospital||Althea||1899248498||3 yrs+|
|‡||Miffy in the Hospital||Bruna D||1405209844|
|‡||Heart Trouble at Hilltop Hospital||Allan N||0099404559||4 yrs+|
|‡||Tomorrow I Will Feel Better||Debode A, Broere R||0237520443||4 yrs+|
|Going into Hospital||Althea||085122539X||3 yrs+|
|Why Am I Going to Hospital?||Ciliotta C and Livingston C||0818405686||6 yrs+|
|Spots Hospital Visit||Hill E||0434942723|
|Emergency Mouse||Stone B||086592127X||5 yrs+|
|The Physiotherapist||Stewart A||0237600722||6 yrs+|
|Sammy Goes to Hospital||Action For Sick Children||0904076075|
|How Does Your Heart Work?||Curry D||9780516278551|
|Hear Your Heart||Showers P, Keller H||0064451399|
|Your Operation: An activity book for children in hospital||Campbell et al||9781874534013|
‡ – available to borrow from E1 Ward
‡ – HIGHLY RECOMMENDED
Good website about coming into hospital. Has separate information for different age groups.
Heart specific information
Good information about the heart aimed at teenagers